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Share Your Celiac Story

You're Not Too Late !!


Dear Friend with Celiac Disease:

Due to the success of the gluten-free book "No Grain No Pain", we are anticipating a sequel. Below is listed a few of the themes we hope to include. If you have any additional ideas which were not covered in the first book which you think would be of interest, we would love to hear from you.

Suggested Topics:

  1. The over-weight celiac
  2. The gluten-free wedding
  3. The gluten-free Christmas
  4. The hospitalized celiac
  5. Allergies and celiac disease
  6. Celiac disease and your dentist
  7. Traveling gluten-free
  8. My Favourite gluten-free birthday
  9. Celiac disease and diabetes
  10. The importance of medic alert
  11. The celiac as a recipient of random acts of kindness
  12. My most embarrassing moment as a celiac
  13. My most hilarious moment as a celiac
  14. My most frustrating moment as a celiac
  15. Life's lessons through the eyes of a celiac
  16. The effect of celiac disease on relationships

Suggested material for each topic:

  1. Most people with celiac disease are underweight, so for those celiacs who have a weight problem this can be very depressing. If you have a weight problem tell us your frustrations (You don't have to be identified in the book ) so you can be better understood and helped by fellow celiacs. This section will include lower calorie recipes.

  2. Your wedding day is a day you want to be perfect. If you are a new bride/groom we want to hear how you planned the perfect gluten-free wedding. Please include recipes if you can for your wedding cake etc. This section will include more gourmet recipes.

  3. Do you have a favourite gluten-free Christmas cake or a special family tradition involving food which you were able to convert to a gluten-free version? Tell us about these. Please include recipes where possible.

  4. Being in hospital is often a challenging experience for a celiac. Have you had such an experience? Tell us about it. Did someone come to your rescue? If so how?

  5. Often specific allergies accompany celiac disease. Do you have allergies? If so, what are they and how do you deal with them? This section will include allergy substitutions for many different foods that may cause an allergy reaction.

  6. Are your teeth chalky? Is your dentist aware of the effect celiac disease may have on your teeth? When did you realize that celiac disease was the culprit? Tell us your story. Include recipes with high calcium ingredients.

  7. Take us with you on your favourite trip via our imagination. Tell us about your most clever coping strategies. Include gluten-free recipes if applicable.

  8. In this chapter we hope to have all kinds of people send in their most memorable birthday cake recipes along with the memories of that specific birthday. Often what makes a peticular cake special is the person who made it or specific circumstances surrounding the day. Tell about your birthday wish for a gluten-free cake you could eat safely and how it came to be.

  9. As if coping with celiac disease is not enough, some people have the added challenge of dealing with being diabetic as well. If you are one of these people maybe you can help others in the same situation. Tell us how you cope and any tips you might have for those newly diagnosed. Include appropriate recipes please, if possible.

  10. Do you wear a medic alert of some type? Has it ever saved you from what could possibly have been a dangerous situation? Did you at one time not wear a medic alert and had an experience that made you wish that you had? Tell us your story.

  11. Have you ever experienced an act of kindness at a time that you were really needing a lift when someone did or said something that just overwhelmed you with appreciation. Tell us about the circumstances and how this helped you move forward despite difficult odds.

  12. Each of us has an event in our life that we can identify with as our most embarrassing moment. The person with celiac disease is no exception. If you have such a moment, that is not too embarrassing to share tell us your story. (You can tell your story in cognito, if you wish. Please state you do not wish to be named in the book if this is he case).

  13. The person with celiac disease has more than his/her share of frustrations. Identify in story form the one most frustrating moment for you as a celiac and how this frustration was over-come or hopefully solved. Your solution may help others!

  14. Although celiac disease is no laughing matter, we all have hilarious moments in our life, sometimes despite the seriousness of a situation. Because laughter is so healing , we would love this chapter to be the thickest one in the book. Can you help us laugh?

  15. Life's most valuable lessons are often learned through difficult situations. Have you learned patience? Do you now have more empathy for others with health concerns? Have you in turn helped others dealing with celiac disease? Tell us how you made what was a difficult experience into something positive. Were you able to make lemonade when you were handed a lemon? Your story will be an encouragement to other celiacs.

For those who share their stories, tips, gluten-free recipes, jokes or inspirationals, thank you in advance. In doing so, you will help other fellow celiacs as well as increase public awareness and understanding of celiac disease.

Please send your stories to me at
shirley@edible-options.com

Or mail to:   32 Layton Street
                      Kitchener, Ontario, Canada
                      N2B 1H2

Sincerely Yours,
Shirley Hartung


No Grain No Pain -- Part II

DETAILS

Following is a guide to make your story interesting, fun and above all helpful. Let’s make this an inspirational book so that even non-celiacs will be interested in reading it. In this way we will also be educating the public about celiac disease.

If you are having trouble getting your story down on paper, it may be helpful to involve other family members who have gone through the experience with you.

Write your story in conversational language and tone, as if you are chatting with a friend over coffee in your kitchen. Give your story a title if you can. Add a poem or cartoon, if you are so gifted. (Or use this format to tell your story.)

I hope to add encouraging and/or humorous words of wisdom or sayings where space allows. If you have any personal ones that are suitable, please include. If they are from another source written permission would be required before these could be re-printed, so be sure to include the source.

Suggestions:

1. Let your personality show through your story. I want to hear the pain, anger and frustration as well as the pleasure you have experienced over each little discovery that has made the celiac life easier for you.

2. If, in looking back, you can now see some humor in an experience relating to being a celiac, please include it in your story. We need to laugh and it will make the book more enjoyable to read as well as give hope to those who are newly diagnosed.

3. Include any tips you have learned, a favourite gluten-free recipe or two (get permission to re-print and forward a copy of same to me if the recipe is not your own personal creation), a favourite cookbook or piece of equipment that has been especially helpful e.g. a bread machine.  *( Please include publisher, brand name etc. where applicable.)

*4. Give written permission for me to re-print your story, (poem or cartoon) all or in part. Please include your address in full as well as your phone number (with area code) and fax or e-mail if applicable so I can contact you for verification if necessary.

5. Suggested length is approximately two typed pages, more or less, depending how much space it takes to tell your story Your poem or story can be in addition to this if necessary or as suggested earlier, it could be your story.

6.CALLING ALL KIDS! Children with celiac disease need to be heard too. Please kids, send in your stories, poems and drawings for the theme you have chosen to write or draw about.

I look forward to both the tears and hopefully the laughter that I will experience as I read your letters. You will be contacted via the national newsletter as to when the book will be available for sale. Please understand if some letters are used only in part. This may be done to avoid repetition and to emphasize a particular part of the letter that is important enough to stand on its own.

Many thanks in advance for the time and emotion that I know you will invest in your story. Thank you also for being willing to share your story with other celiacs and the world.

It is my hope that EACH member of your chapter will participate in this project, and that you will encourage other biopsied celiacs that you know outside the chapter to do so as well so that this book will truly represent the "Celiac" story !

PLEASE FEEL FREE TO DUPLICATE THIS LETTER AS OFTEN AS YOU NEED TO AND PASS IT ON!

Shirley Hartung

P.S. Please send your stories, gluten-free recipes, tips etc. to me at shirley@edible-options.com

Or mail to: 32 Layton Street
                    Kitchener, ON
                    N2B 1H2
                    Canada


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